First,
THANK YOU
(that’s a big thank you) to my blogging friends that offered words of support in my last post. You guys really touched my heart and lifted my spirits. It was a comfort to know I’m not going through this alone.
I had a doc appointment today to discuss all the issues that caused me to become so upset. I met with a patient advocate and also went into a healing hands room for laying on of hands and prayer. I was stoked to find someone offering this treatment, licensed and able to help me at my doc’s office. Yay me 🙂 I must say despite all the doc had to say, I know my God in heaven has a plan and he’s going somewhere with this. Things went rapidly for me today. I went in and filled out some more paperwork so my case could be forwarded to a specialist that deals with Parkinson’s disease. Yes, that is what the doc finally put her stamp on. She read the findings of all the studies and her conclusion in her professional opinion is that I do indeed have medically documented neurological symptoms that lead her to believe I have Parkinson’s. She prescribed Sinemet which I can’t start yet because the pharmacy needs to order it.
So…obviously…mixed emotions. On the one hand I’m ecstatic that I finally have a diagnosis. On the other hand, my diagnosis is an incurable disease. The pain medication, if needed, will come in time depending on what the neurologist has to say. For now we are starting with just the Sinemet and trying to see how well it does and exactly what it does for me. She was compassionate and kind which was a nice response compared to the stone walling I had been experiencing. We talked about possibly looking into a support group to help me better understand my diagnosis. I feel validated. I feel scared. I feel teary and sad yet relived that I am no longer at war with some mystery illness. Funny enough, it was the “useless sleep study” I didn’t want to go through and almost skipped that gave her the biggest clinical tool for diagnosis. My Upper GI was helpful too. It showed problems swallowing exactly as I had reported. I’m joyous to be able to prove my pain and yet it lessens it none.
I will start catching up on my Blogging 101 assignments tomorrow. I’m a few days behind but hopefully it wont be too difficult.
I hope you all have a great day or night, wherever you are.
~Pixie
The Peridot Pixie 